LET THEM SUFFER

"Sick children who have been taking part in trials for a drug that has transformed their lives now face the prospect of being denied the treatment because of NHS cost-cutting. Doctors have condemned the NHS for inflicting misery on children who have the painful rare blood disorder sickle cell anaemia. Some children have gone from the agonising routine of having their parents insert a needle into their stomach for eight to 12 hours a night at least five nights a week, to taking two Exjade tablets daily. The drug cleanses their blood of life-threatening excess iron - a side effect of the frequent blood transfusions needed to treat the disease." (Observer, 3 June) 10,000 people in the UK suffer from this condition, so why the delay in supplying this drug? It costs £10,000-£15,000 for a year's supply for a sufferer. Need any other explanation? RD